Adjusted (being 6 weeks early) Owen is only 3 weeks old when he undergos his heart surgery, in the cardiologist letter he wrote "I fear Owen will not make it to the next cardiology appointment". We flew to Sydney (a 9 hour drive from here) and took our little 17mth toddler with us but we were far from family and friends. I wrote this email to them after the surgery:
Surgery went well the surgeon was happy with the way things went he said the holes in his heart were very large and his heart had been working hard to pump his blood around, the valves he made using Owens own tissue were working very well.
Since Wednesdays operation he has been on life support but yesterday they took him off the paralysing drug and last night he opened his eyes for the first time - it is like he has been BORN again, we were so excited and he is responding when we say his name and talk to him he opens his eyes WIDE, its magic.
Since Wednesdays operation he has been on life support but yesterday they took him off the paralysing drug and last night he opened his eyes for the first time - it is like he has been BORN again, we were so excited and he is responding when we say his name and talk to him he opens his eyes WIDE, its magic.
Probably the most shocking thing has been how swollen he is particulary his face, Col and I said that if there was a line up of babys we wouldn't have recognised him, they say this is normal due being on life support, not moving at all and the heart being "insulted" after becasue of the surgery. But now that he is coming off the paralysing drug and he is starting to wiggle and blink the puffyness is going away quickly.
Oh and yesterday he started having breastmilk all 2 mls and hour (now up to 6 mls this morning), and one of the chest drains came out whoo hooo (a big moment).
He will remain on life support today he is still having some trouble maintianing his blood pressure and he ison the pacemaker again today not sure why but that is a step backwards I guess overall though he is inching forwards. He is going very steady which we are really thrilled about.
We have moved to Ron Macs house which is fantastic we are very lucky to have got in it makes things alot better for us, everyone is very generous.
We are holding up, though at times it is very very upsetting and exhausting. There are SO many babies and families here going through a difficult time, we are not alone and we all support each other.
Okay well I have to go thanks to everyone we feel loved and supported.
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